“Designing support and social participation to foster wellbeing during the dementia journey”
Wednesday 19 May 2021, 11:30-13:30
11:30 Welcome and introductions
11:40 My experiences of living with dementia - Laurence
Gardiner, UK & Netherlands
11:50 Reflection on the experiences of caregivers - Angela
Clifford, University of Wolverhampton
12:00 Innovation? Rocket science? Living well beyond
diagnosis - Nicky Timmis, Health Innovation Manchester;
Liz Brookes, Manchester
12:10 Everyday places: Why neighbourhoods matter for people
living with dementia - Sarah Campbell, Manchester
12:30 The IDoService project: Facilitating access to
meaningful activities - Isabelle Tournier, Manchester
12:40 Comforting things for difficult times - Cathy
Treadaway, Cardiff Metropolitan University
12:50 MinD Living the LIfe & This Is Me game - Kristina
Niedderer, Manchester Metropolitan University
13:00 Questions & Answers
Dr Tournier is currently the main researcher of the IDoService project (2020-2022) that aims to develop a special service to allow people living with mild dementia to plan, connect with and participate in tailored opportunities to realise themselves and continue to be fully part of society. This project is funded by the European funding programme Marie Sklodowska-Curie Action Individual Fellowships (grant agreement No 895620) and supervised by Prof. Kristina Niedderer.
The IDoService: Facilitating Inclusion and Empowerment of People Living with Dementia through Access to Cultural and Creative Activities
We all have activities we enjoy doing, at home or outside, for ourselves or with others. This may be for example meeting friends, helping a neighbour, volunteering, walking the dog every morning, writing poems or singing in the local choir. These activities provide us and others with wellbeing and are an important part of our daily life. However, having dementia can make it increasingly difficult to continue doing the activities we enjoy now and in the future.
The objective of the IDoService project is to support people to plan, connect with, and take part in activities they enjoy and thus continue to contribute to their communities. To achieve this, it is essential to have a good understanding of what people like to do, what is available to them and what is not. It is also important to know what challenges people encounter in participating in activities, how they adapt to these, and which strategies or support might help.
The IDoService project aims to co-develop, implement and evaluate a service to increase the socio-cultural involvement and empowerment of people living with mild to moderate stages of dementia. This research combines psychology and service design with a participatory design methodology that will actively involve in the design process relevant stakeholders – i.e- people living with mild to moderate stage of dementia, their family and friends as well as other stakeholders in the field of dementia and activities. Their lived experience is essential to develop a user-friendly service that will allow people living with dementia to plan, connect with and take part in tailored opportunities to realise themselves and to contribute to society.
The project will run from October 2020 to October 2022 and will progress through three stages:
• Stage 1 - Overview of services and needs regarding leisure activities
We will review existing local service offers and access support to them (e.g., financial support, specific transportation offer) regarding leisure activities for people living with dementia in the Greater Manchester. This will provide a clear overview of the social opportunities available, especially for cultural and creative activities.
At the same time, we will conduct individual and group interviews with stakeholders. We will discuss together about the availability, accessibility, needs, and wishes regarding leisure opportunities for people at early stages of dementia.
• Stage 2 – Participatory development of the IDoService
At this step, we will conduct four design workshops with stakeholders to develop together the IDoService. In a first workshop, insights issue from Stage 1 will be presented to participants and we will explore speculative design ideas in response to this data.
The three following workshops will be devoted to refining these initial ideas by exploring potential service models (content, features, etc.) to lead to the creation of experiential prototypes discussed in term of perceived usefulness and user friendliness.
• Stage 3 - Evaluation of the IDoService by potential users
This last stage will consist in asking to a panel of potential users to give us their impressions and feedbacks regarding service prototypes developed in Stage 2. To that end, the prototypes will be tested over several weeks during their daily life by people living with mild to moderate stage of dementia and a family member/close friend. We will focus again on perceived usefulness and user friendliness but also on the potential perceived changes linked to autonomy, social participation, decision making and quality of life.
The IDoService project build on the interdisciplinary participative design approach, ideas of empowerment and social engagement developed during the European project MinD already let by the Manchester Metropolitan University (2016-2020). The IDoService project offers a unique opportunity to develop the largely unexploited potential of design to support people living with dementia as well as the realisation of local and national policies regarding dementia friendly communities in the UK.
Researchers involved and contacts:
Pr. Kristina Niedderer, Ph.D. Professor of Design (email@example.com). Manchester Metropolitan University, Chatham Building, Room 511. Learn more about Kristina: https://www.art.mmu.ac.uk/profile/kniedderer
Dr. Isabelle Tournier, Ph.D. Postdoctoral researcher in psychology and design (firstname.lastname@example.org). Manchester Metropolitan University, Chatham Building. Learn more about Isabelle: https://www.art.mmu.ac.uk/profile/itournier
Laura Orton, Research assistant in design (email@example.com). Manchester Metropolitan University, Chatham Building. Learn more about Laura: https://degreeshow.mmu.ac.uk/2019/LauraOrton/
IDoService contact email: firstname.lastname@example.org
Pr. Anya Ahmed, PhD. Professor of Wellbeing and Communities (email@example.com). Manchester Metropolitan University, Brooks Building. Learn more about Anya: https://www.mmu.ac.uk/hpsc/our-staff/browse/department-of-social-care-and-social-work/profile/index.php?id=4803
Pr. Tom Dening. Professor of Dementia Research (firstname.lastname@example.org). University of Nottingham, Innovation Park. Learn more about Tom: https://www.nottingham.ac.uk/medicine/people/tom.dening
Pr. Vjera Holthoff-Detto. Head, Geriatric and Psychiatric Clinic, Alexianer St Hedwig Hospital, Berlin, Germany. Learn more about Vjera (in German): https://www.alexianer-berlin-hedwigkliniken.de/
Ingeborg Griffioen. Director of Panton Healthcare Design, Deventer, Netherlands. Learn more about Ingeborg: https://www.panton.nl/en/about-us/
Are you interested in participating in this study?
Involving people living with mild to moderate stage of dementia and people who care for them is essential for this project. It is hard to imagine how we could possibly start designing things for people to use without getting their help and insights, preferably at every stage of our work.
We are looking for dyads of people living with an early-to-mid stage of dementia and close relatives/friends to take part to activities linked to this project (interviews and focus groups, co-design workshops and/or evaluation sessions).
If you are interested in taking part of this study or if you want more information about it, please do not hesitate to contact us on the following email address:
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie grant agreement No 895620. This website reflects only the authors' view and the Research Executive Agency is not responsible for any use that may be made of the information it contains.